魅影直播 welcomes rare diseases research landscape report
The National Institute for Health and Care Research (NIHR) has today published the first , in collaboration with the Medical Research Council (MRC), industry, charities and the devolved administrations. It gives an overview of rare disease research being sponsored by Government, charities and industry in the UK. The 魅影直播 contributed data from an industry perspective.聽
Research is a global endeavour and industry has more than 700 medicines in development internationally for rare diseases. We want to make sure that UK patients can benefit from these advances. This report demonstrates the vibrant ecosystem for rare disease research that we have in the UK and underlines the importance of attracting industry to carry out clinical trials here. Janet Valentine, 魅影直播 Director of Innovation and Research Policy
Welcoming the publication, Janet Valentine, the 魅影直播鈥檚 Director of Innovation and Research Policy said:
鈥淭his report is the first of its kind that maps out the UK rare diseases research landscape across Government, charity and industry. It provides a helpful overview of the research activities underway in conditions that affect 1 in 17 people in the UK.
鈥淩esearch is a global endeavour and industry has more than internationally for rare diseases. We want to make sure that UK patients can benefit from these advances. This report demonstrates the vibrant ecosystem for rare disease research that we have in the UK and underlines the importance of attracting industry to carry out clinical trials here.鈥�
- Rare diseases
Last modified: 22 September 2023
Last reviewed: 22 September 2023
